Today is a big day. A day worth celebrating. Porter has now been home for more days than he spent in the hospital!! 104 days in the hospital and 105 days at home, right where he should be!
The first 3 1/2 months were hard. HARD. But oh so worth it to have this little guy in our lives. He’s so funny and happy. He’s pretty content unless he’s hungry or sleepy. He’s quite the handsome little man. I could just kiss his cheeks all day long! These most recent 3 1/2 months have been a dream.
Ironically, this celebration comes just one day before his next hospital admission. We will be taking him back to CHOP for a fasting test tomorrow through Monday. He’s currently off of his sugar meds and the diuretic that goes along with it. So far his blood sugar levels have been good. They’re on the low end of normal first thing in the morning after 12 hours with no food, but that’s typical. The fast will last for 24 hours. Fingers crossed.
But for now, we celebrate today!